Muscular Dystrophy | Duchenne Muscular Dystrophy | Muscular Dystrophy Treatment | Limb Girdle Muscular Dystrophy | Muscular Dystrophy Association | Muscular Dystrophy Symptoms

Muscular Dystrophy (A Silent Killer)

Your age ranges from 2 years to 60 years. You are living the perfect life. This killer can hide or sleep in your body and mine too. Who can wake up at any moment.

Muscular dystrophy is commonly known as muscle disease. It is considered as the hidden killer in our genes. Who wakes up in any part of the age and causes pain in some parts of the body or in the whole body. And this murderer takes his victim close to the mouth of death, seeing the springs of life while playing.

Today I will discuss Muscular Dystrophy in detail. And the ways to avoid the tricks and attacks of this killer will be discussed. Please stop what you are doing to read the text now. This is a very important topic that you must read.

There are 8 types of this disease but in the pictorial presentation there are 6 types. Which are common. As you read the text, you have to look at the picture starting from A and going down to F.

Let's discuss all the methods of this silent killer in turn.

A. Duchenne Muscular Dystrophy

This is the most common type in patients with muscular dystrophy. It is a genetic or hereditary disease. And the youngest that occurs is Duchenne Muscular Dystrophy. It always happens to boys. Because inside him, mother is his career. And the disease, when it appears, appears in boys born.

Now what happens in it? The baby is born perfectly fine. Completes all milestones like other children his age. Walking, talking, everything is perfect. As soon as the child is 5 years old, the killer wakes up from within and lifts the heel of the child's foot off the ground. And at the first sign of shaking his prey, he starts clawing at it. After a few months, the baby starts walking by pushing out its breast. Like wrestlers walk with their chests held high. The killer hidden inside has been challenging me with his chest raised and his heels raised.

Parents were scolding the child that how are you doing? Put your heels down and pull your chest back. But the child is not able to do that. And the parents would have ignored it as a habit of the child. And the cowardly killer would have been sharpening his stab on the child's muscles.

Then what happens after a few months that the child does not get up when he starts sitting up. He would fall back. Or even if he wakes up, he wakes up with his hand on the clock. And day by day the legs became weak. Apparently, the legs would be fine, but the muscles inside would be weak and breaking fast. Because the parents don't know what war has started inside the child. And the enemy continued to attack innocent people day and night.

Getting up with your hands on your knees starts identifying the disease. This is called Gower's sign. Parents now take the child seriously. The age of the child would have been 7 to 8 years. That is, for 2 to 3 years continuously, the killer continued to do his work and the parents did not know. Now, if you go to a specialist doctor, he would recognize that it is muscular dystrophy. The majority of the population did not have access to specialist doctors, so they would go to a gifted, massaged orthopedic surgeon who would use his tips to give the killer more time to swallow his victim. By the time the disease was fully diagnosed, the child would have died.

It was difficult to sit up. Then climbing the stairs became difficult. Now the shoulder joints started to weaken. And the upper arms start to stop working. By the age of 10, moving the arm from the shoulder becomes very difficult and in many cases impossible. Legs and arms would have been completely or 90 percent paralyzed.

The child can no longer drink water. The loaf of bread cannot be broken. Can't comb. The hand does not rise while wearing the shirt. This weakness is increasing day by day. And in some children, the heart muscle also begins to weaken. The killer now makes his move towards affecting the blood pumping ability. This is what we call cardiomyopathy. If this happens, the child's life can be threatened.

These children with Duchenne Muscular Dystrophy walk for up to 10 years. Then comes the wheelchair or the four wheeler. And can never stand or walk again. Or it becomes very difficult to walk with a support.

When is a dangerous situation created? Illness struck. And the child got fever. The disease is just beginning and the child is kept by the parents. The killer accelerates his attack on the still child and the muscles begin to waste very quickly. Never let these children lie down with fever all the time. Give children a little bit of paracetamol. Once muscle wasting begins, you can't stop it. The arrow will come out of the bow.

Neem Hakeem or Attai or the old elders of our house say to make the child exercise. This will invigorate the muscles. This is the biggest mistake a parent would make and the muscles that are already weakening would be destroyed. Exercise enough to prevent joint stiffness. Keep them moving and do moderate bodyweight exercises without lifting anything. The child should not be tired. In these diseases, the muscles of children become like paper, they break down very quickly.

So many Duchenne Muscular Dystrophy children have had foot operations I have seen with my own eyes. Now I will murder the Atai or the certified doctor who operated on this child. Parents don't know, you guys should understand. If you don't know, ask someone.

Why is the heel raised?

The muscles of the legs, hips and back would be contracting. Now the body tries to compensate these muscles by automatically raising the heel of the foot to protect these muscles from breaking. That parents save this child. Save his leg muscles from wasting away. When the heel was placed on the ground in any way, the muscles would break and be lost forever.

Never wear a belt if the stomach is protruding. This will start to weaken the paraspinal muscles.

How can we avoid the killer's blow?

There is no cure for it in the whole world. Which can completely eliminate it. Yes, stem cell therapy may be helpful in treating it after a few years, but as of today there is no cure.

Majority of children with Duchenne Muscular Dystrophy in Pakistan die in their teenage years (13 to 19) due to late diagnosis. If detected early and the quality of life is improved, children's lives can go up to 30 to 40 and in very rare cases to 50. We have to change their lifestyle and overall environment and support system for these children. They don't have to be carried and driven, but given a purpose in life in a wheelchair. The purpose of which is to extend their life.

Let me remember one thing that we can improve the quality of life for ourselves and the children with muscular dystrophy, but we cannot increase the quantity of life. Remember this is a rough principal.

Do not massage at all.
Do not wear any braces or special shoes.
Do not undergo any surgery.
All bakery items, rice, cold drinks, artificial juices should not be given to children at all.
Don't let kids get fat at all.
As soon as the child was considered fat, he passed away.
They have to be sent to school but only as long as they can easily go.
Don't stress about studies and exams.
To be happy. Don't give in to depression.
Too many doctors don't change. There is no cure, only lifestyle changes.
The more times I go to new doctors, the stress will increase in the child that I will not be cured.

Accept this disability from day one. And also explain well to the child that you have to spend your life now with a wheelchair.

Do not give the dream of walking to innocent eyes that will not come true. Unfulfilled or unfulfilled waking dreams often tear us adults apart. These would have been innocent children.

Can't afford it by asking someone to sell the jewelry, livestock, and give these children an electric Japanese power wheelchair. Even if it takes five to ten years.

Teach the children to operate that wheelchair. Keep your house level just 6 inches or 1 foot above street or road level outside. And build a ramp. The child can go out and come home whenever he wants. Don't limit it to a one-room house or bed.

Try to build ramps in mosque, temple, church, imam bargah, gir dwara. Allow the child's wheelchair to enter the mosque without being pushed. Make the ablution place special so that this child can perform ablution while sitting on a wheelchair in the mosque. He should go inside the mosque while sitting on a wheelchair. Worship and let no one stop him.

The stronger the relationship with God. The more will be the dedication to do something in life. And spiritual powers will also improve the quality of life.

These children do not have any problem in speaking. You can create a YouTube channel.

Become a voice over artist.
Can become a newscaster.
We can do logging.

Place their wheelchair or cot higher than normal. For the bed sofa, anything on which they sit in the school, college or office should be raised by placing bricks etc. at the bottom. That it does not take much effort to get up. If you want to get up, stand up as soon as your feet touch the ground.

Every time they lift up by straining the thigh muscles, those muscles break. And the ability to get up diminishes and ends. Therefore, make their sitting place high. Do not force at all while getting up.

It is better not to come to marriage. Marriage can also be decided by consulting a doctor after seeing the severity of the disease.

The most common test for the medical diagnosis of Duchenne Muscular Dystrophy. cpk This is a blood test. The amount of barley is thousands of times higher than average. Normal CPK is in the range of 150. Also EMG can be. Muscular regression may also occur.

B. Becker's Muscular Dystrophy

Duchenne appears in 4 to 5 years. While Baker appears from 15 to 19 years. Initial symptoms will be similar to Duchenne. Most children do not even have a heel spur like Duchenne. But the stomach and chest start to come out. It is difficult to sit up. Can fall while walking. Or it does not stay stable and starts to fight. There is no life in the legs.

Look at the picture with B. Shoulders and hands start to stop working. Arms do not rise. The symptoms are similar to those of Duchenne, but there is a difference in age. In this, the killer woke up in 4 years and remained hidden here for 15 to 19 years.

If the disease is diagnosed early, this child can live for the next ten years. That it should be supported. This thing will not end. All we have to do is improve the patient's quality of life and completely change the lifestyle. By the age of 30 to 32, despite all kinds of support, these children also end up in wheelchairs.

All the precautions and lifestyle changes mentioned above in Dushan are for these children as well. Don't be fat. Don't exercise too much. Don't hurt yourself. Run from city to city seeking treatment. Do not brace, belt. Do not undergo surgery. Elevate their wheelchair or high chair. For the bed sofa, anything on which they sit in the school, college or office should be raised by placing bricks etc. at the bottom. That it does not take much effort to get up. If you want to get up, stand up as soon as your feet touch the ground.

Take an electric tricycle to go wherever you want. Ajati is a good electric tricycle worth 150,000 which is perfect for both Dushan and Baker.

A three-wheeler is not for them. It can fall. It is good for people with polio. Their upper torso is very strong. While their upper torso would have been very weak. Can't handle.

It may contain CPK cpk should not be high when tested. It can only be detected by EMG or clinical correlation. Or there may be muscle recurrence. After the diagnosis, lifestyle changes should not be wasted on treatment. I have been saying this over and over again.

C. Limb Girdle Muscular Dystrophy

Well, this type can occur at any age from 2 years to 40 years. The symptoms will be the same. The muscles that will be weak in it

hip and shoulder areas (limb-girdle area)

but will be The symptoms will be the same. Caution is all the same.

But in this type of disease attack can happen till the age of 40 years. Before this, the killer is sleeping completely silent. You are living a great ideal and healthy life.

D. Faciocapulohumeral Dystrophy

That is, both face and shoulder are affected in it. See photos with D. In this, the structure or size of the face shrinks on one or both sides. Shoulders and arms become very weak. The type of disease can strike at any time from 20 years to 50 years. Generally, its age of onset is seen after forty.

It usually has very short legs. At whatever age a sleeping killer wakes up, caution and lifestyle are all the same as you have read above.

E. Distal Muscular Dystrophy

This disease can also appear at any age. It usually appears between the ages of 40 and 60. In this you can also see in the photo that the distal parts of the body. That is, areas far away from the center are affected. Arms lower than elbows and legs lower than knees.

In this also the signs and all other things will be the same as in Dushan.

F. Oculo-pharyngeal Muscular Dystrophy

It is also a rare form of muscular dystrophy. It usually appears between the ages of 40 and 60 in both men and women. In this, the muscles of the eyes and throat begin to weaken. And change the shape of the eyes. Our eyebrows hang down. And the skin of Gee also gets dehydrated. This patient has trouble seeing and eating. There is no true cure. Just change the lifestyle.

Now to get the crux of the whole story, I will say two things.

1. There will be a long life rehabilitation process. It will not be wrong to call it life time. Choose a good rehabilitation specialist. Stay connected online. And continue to seek guidance from Him to solve the problems that arise as life goes on. Rehabilitation specialists working with such children in advanced countries charge an annual fee. And are available on phone call. I personally provide this service.

Right now I have two children whose parents I have taken out of psychiatry after a lot of effort and into rehabilitation. In developed countries, these children's diet plan, relationships, education, job, lifestyle, major life decisions are all under the supervision of experts.

You can talk to me on the phone once or twice.

I can consult together. This service is completely free for children with lifelong conditions such as Muscular Dystrophy, Cerebral Palsy and Down Syndrome.

And what would happen here? Do not go out to the grave at night

Who brought it to my throat

Jehada Lord disease la sikda ao katvi te sikda ae (And in this cycle of futile hope, going from city to city in search of treatment, the good and sensible parents water down the remaining abilities of the child)

2. For these children, at home, school, college, mosque, office, everywhere, there are changes to be made. Don't let them live an aimless life. Wherever a child is associated with muscular dystrophy. If his parents cannot, other members of the community should work together to ensure that the child has access to every possible place. The Parks and Horticulture Authority is legally obliged to open the corridors and gates of the park and grounds for its access to the park. All banks are required to build ramps. But as the ramps were built in the banks, they are not at all right. She was just a fairy. Ramps should be built in the offices in the plazas and these people should have access everywhere including wheelchairs.